Teen and Parent Lupus Chat Groups



"I love being part of this program. It has changed my life and I will recommend it to other teens!" -Widalys Robles

What: Teen and Parent Lupus Chat Groups is a monthly in-person chat group for teens (14 to 18) who have lupus and their parents. The group was launched as an extension of the Charla de Lupus (Lupus Chat) program. Parents of teens with lupus meet separately at the same time. The groups offer informal discussion, support, sharing of experiences, guest speakers, group activities, and celebrations. Close friends and family members are welcome.

When: Both groups meet the third Thursday of each month from 6pm to 8 pm at alternating hospital sites in New York City. We encourage new members to contact the Program Associates on weekdays between 9am and 5pm EST, for an initial screening and to join our mailing list.

Contact: Erica Sandoval and Lillian Mendez, Program Associates
(212) 606-1958
(866) 812-4494, outside NYC (toll-free)
sandovale@hss.edu, mendezl@hss.edu   

VOLUNTEERS ALSO NEEDED! In addition, we are always seeking volunteers (ages 18 and older) to help our programs grow. Participants find the training and volunteer experience extremely rewarding. If you live in the New York metropolitan area, we encourage you to contact the Program Associates listed above for more information.

The Teen and Parent Lupus Chat Groups Program, offered by Hospital for Special Surgery, is made possible through funding by Rheuminations, Inc.

Download For Inquiring Teens With Lupus: Our Thoughts, Issues, & Concerns (pdf file), a 20-page booklet written by a young woman diagnosed with lupus as a teen. This booklet takes into account some of the specific issues, both medical and psychosocial, relevant to adolescents who are living with lupus. A list of resources for teens with lupus is also included.
Available in English or Chinese below.

         
English (pdf)                Chinese (pdf)

What Users Have Said About the Program

"The meetings were helpful in my life; it helped me to understand my sickness. It helped me to understand how other kids deal with the same sickness I have."
- Chris Peguero (Teen)

"The group makes me feel strong and knowledgeable about the disease. I'll keep coming as long as I can. It's like having a family who is willing to help."
- Teresita (Parent)

"I love being part of this program. It has changed my life and I will recommend it to other teens!"
- Widalys Robles


posted 8/23/2006





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