Scleroderma Registry

Mary K. Crow, MD
Kyriakos A. Kirou, MD
Jane E. Salmon, MD
Stacey Kloiber 
Mansi Mehta
 

Summary

The purpose of the Scleroderma Registry is to gather as much information as we can about as many patients as possible who have this rare condition.  This will facilitate investigators in developing a better understanding of its clinical features, pathobiology (the study of the biological changes in the body caused by disease), and genetic links. With this increased knowledge, investigators hope to identify the unmet needs of patients with scleroderma and develop new and better treatments to improve disease outcomes and quality of life. Patients will be asked to allow researchers to gather information about their background and medical history, obtain and store their blood, serum, plasma, and tissue samples and gather clinical information on them. Approximately 200 patients will be enrolled during the course of this registry. Patients will be followed-up with every four (+/-1) months.

Inclusion/Exclusion Criteria

Anyone diagnosed with scleroderma will be included in this registry, while those who do not have scleroderma will not.

Contact Information

Robert Spiera, MD
212.744.2048